When our children are first starting to put sentences together and use multi-syllabic words, we are gifted with hours of amusement and endless family anecdotes. My three olds make up words and butcher syntax like any other kids their age, and of course we think it’s all hilarious.

Within the past hour, George asked me if a knife was “only for peoples” (his way of saying grownups), and after ranting at me about something, claimed that he didn’t scream, he just “yellowed.” Eleanor doesn’t just wear dresses – she wears “ballerinas.” And for a long time, she would announce in her best ring master voice, “ladies and Jaqueline!” Sorry Jaquelines of the world, but I think my daughter just called you a ho.

From George’s vehement, “YES I are!” retorts to Eleanor’s newest addition to the dictionary: “lasterday,” we revel in their audacity – their uninhibited assault on the English language. And we never tire of recounting these stories to both doting grandparents and graciously indulgent friends alike.

She is something else…

He is quite a character…

But I’ve realized that we don’t tell as many dialogue-related stories about my oldest son. And this isn’t surprising since his delays have made him much slower to experiment with language.

Where the twins, like other children, fling new words like confetti, five year old Oliver holds them close, tucks them into pockets and puzzles over them like foreign currency. The concept of language is understood, but the values attributed to the various elements still elude him.

Of course, he has made us laugh over the years with his own grammatical missteps and mispronunciations. In fact he charmed me just the other day by telling me that I “misappeared.” But these moments have been fewer, farther between and always overshadowed by the worry over what the future may hold.

I’ve been thinking about that more and more as I see the unbalanced ratio of blog posts dedicated to the funny things my children say. Oliver is not very well represented – and that makes me sad.

Because he is just as much of a delight to me as my twins. But who would know it?

I guess we just assume that others won’t appreciate these stories as much as we do. They don’t know how hard he works for what comes so easily to other kids. His funny stories would be more common to children two years younger and don’t seem quite as cute in the context of a boy his age. For those of us who know him well and love him just the way he is, there is no difference. We laugh and beam with pride and find him just as entertaining as his siblings. It’s like an inside joke that only we understand. So why bother?

But that’s not fair to him at all. Especially since there actually are other perspectives or contexts in which anyone can appreciate anecdotes about Oliver.

For a long time, I’ve likened his more unusual social anxieties and his tendency to disengage at times to that of a tourist who doesn’t speak the local language. Or at least not well – possibly due to dialect. He may understand a little of what is said, but the nuances might give him the slip. He doesn’t feel safe much of the time. He doesn’t know what people want of him and what their intentions are. New people could seem nice but really have nefarious plans for him (hello, good natured lab technician who performs pediatric blood tests!) So often, when he feels unsure of himself or the situation he’s encountered, he’ll wander off – withdraw into his imagination.

I’ve frequently remarked that it sounds like he’s speaking second language – like he’s a tourist or recent arrival here. His conversations are more stilted and formal. There are more pauses and confused expressions. And much like an Ellis Island alum, he communicates through rather imperfect English. It’s not baby talk and his diction is quite good, but he mixes up his prepositions and tenses like an immigrant mixes his metaphors.

Just today at the pool when the the lifeguard called “Break!” he looked at me and said, “time to get out Mom, the pool is breaking.”

I imagine Cousin Larry Appleton and I could share many a laugh over these little gems. It’s funny! It’s adorable. And it’s worth documenting and remembering.

He’s something else.

He’s quite a character.

Now don’t get me wrong. We are doing everything we can to help him improve his communication skills so he’ll eventually catch up with his peers and engage in more intuitive, spontaneous conversation. And he’s making some amazing progress with both existing and new therapies this summer. But we’re certainly not in a holding pattern, waiting for the results.

We enjoy every day with Oliver. We think he’s spectacular. We couldn’t imagine life without him. Exactly the way he is.

“The way he is” has changed quite a bit over the past year and continues to do so at a rate that even I – the eternal optimist when it comes to Oliver’s potential – wouldn’t have dreamed possible. And just like a parent does with a typically developing child, I’m simultaneously thrilled and grieved by his advances. Probably a bit less of the latter since these changes are triumphs that can’t be taken for granted. But what can I say? I’m a mother. I miss my babies as much as I admire the people they are becoming.

Because we really do focus so much on helping Oliver gain skills, this is a common topic of conversation with people close to our family. And in that conversation, people sometimes say rather thoughtless things.

I typically try to hear these things as they are intended and don’t take offense – but I have to admit to one exception. On several occasions, different people have made a reference to “fixing Oliver.” As in, “once we get him fixed…“

I KNOW that this isn’t supposed to be degrading to my son as a person, but I can’t help it…it upsets me. And I can’t just say “ah well – semantics!” and move on. Because I know that on some level these same people do consider him defective. Broken.

And I’m not faulting them for that because technically, they aren’t entirely wrong. But I don’t take the same broad perspective. I don’t see him as needing to be fixed – I see delays or disconnects that need to be addressed. He’s not broken, but he’s different. And it’s holding him back. And we can help him.

But I don’t think we help Oliver by seeing him as a thing that needs to be repaired. Because there is one area in which he is incredibly advanced. He is very aware of how he is perceived. He feels our disappointment, our dissatisfaction, our displeasure. He knows when he fails – even if he doesn’t know why. And the wounded look in his eyes tears my heart to pieces.

My son is not a vacuum cleaner or a DVD player. He’s not useless until repaired.

Even if he didn’t make one single advance in therapy this year, he’d be just as precious – just as loved. He is kind and intelligent. He’s funny and full of charisma. He challenges us and teaches us. And he makes me a far better person than I ever would have been without him. He’s helped to heal many of my own broken pieces. He’s mended cracks and made me feel whole. And I would never dare to presume that he is any less for his differences.

So I marvel over what a beautiful boy I have and enjoy big belly laughs over his quirks and crazy English. And I hope that even if he does get fixed in the end – and no one would ever know that he was once “broken” – he’ll still retain some of his otherness. Because it’s the nicks and cracks – the rough edges and battle scars – the unique imperfections – that show our depth of character.

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